Determinants of the quality of life of mother with children with disability: A systematic review

Eka Falentina Tarigan, Trias Mahmudiono, Nunik Puspitasari, Pramesti Pradna Paramita, Ira Dwijayanti

Abstract

Mothers who care for children with disabilities experience various problems that affect their quality of life. The objective of this study was to identify the factors that influence the quality of life of mothers with disabilities children. A systematic review was conducted using data from six prominent electronic databases. Studies were observational, cross-sectional designs, and original research conducted from 2019 to 2023. Mothers who have children with Autism Spectrum Disorder (ASD) have the lowest scores for quality of life compared to mothers who have children with other types of disabilities. Parents have lower quality of life scores as primary caregivers compared to other caregivers. WHOQOL-Bref is the most widely used method as an instrument for evaluating quality of life. Parents who have children with disabilities experience problems, especially psychological health. The main factor related to the quality of life of parents who have children with disabilities is lifestyle. Parents who experience a decrease in quality of life are worried that their ability to provide care will not be optimal. It is recommended for health workers to socialize healthy lifestyle behaviors so that they can help improve the quality of life of parents who have children with disabilities.

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