Perceptions of midwifery students and their lecturers regarding challenges faced by deaf pregnant women in accessing maternity care
Abstract
Full Text:
PDFReferences
WHO. D/deafness and hearing loss. 2019; Available from:
https://www.who.int/news-room/factsheets/detail/D/deafness-and- hearing-loss. .
Statistics South Africa. Profile of persons with disabilities in
South Africa. Report No. 03-01-59. 2011; Available
from:
https://www.statssa.gov.za/publications/Report-03-
-59/Report-03-01-592011.pdf. .
Nketsia W, Mprah WK, Opoku MP, Juventus D and
Amponteng M. Achieving universal reproductive
health coverage for deaf women in Ghana: an
explanatory study of knowledge of contraceptive
methods, pregnancy and safe abortion practices.
BMC Health Services Research, 2022. 22(1): p. 954
DOI: https://doi.org/10.1186/s12913-022-08323-5.
National Department of Social Development. White paper on
the rights of persons with disabilities. 2016;
Available from:
https://www.gov.za/documents/white-paper-rightspersons-disabilities-official-publication-andgazetting-white-paper.
Ahumuza SE, Matovu JK, Ddamulira JB and Muhanguzi
FK. Challenges in accessing sexual and reproductive
health services by people with physical disabilities in
Kampala, Uganda. Reproductive Health, 2014. 11(1):
p. 59 DOI: https://doi.org/10.1186/1742-4755-11-59.
United Nations Committee on Economic and Social Rights.
International covenant on economic, social and
cultural rights. 1966; Available from:
https://www.ohchr.org/en/instrumentsmechanisms/instruments/international-covenanteconomic-social-and-cultural-rights.
Sporek P. Improving the experience of pregnancy and
childbirth for deaf people and their families. Pract
Midwife, 2014. 17(4): p. 12-4.
Laur A. Healthcare access for deaf patients - The legal and
ethical perspectives. Med Leg J, 2018. 86(1): p. 36-
DOI: https://doi.org/10.1177/0025817217743416.
Gichane MW, Heap M, Fontes M and London L. "They
must understand we are people": Pregnancy and
maternity service use among signing Deaf women in
Cape Town. Disabil Health J, 2017. 10(3): p. 434-
DOI: https://doi.org/10.1016/j.dhjo.2017.03.016.
Turkmani S, Currie S, Mungia J, Assefi N, Rahmanzai AJ,
Azfar P and Bartlett L. ‘Midwives are the backbone
of our health system’: Lessons from Afghanistan to
guide expansion of midwifery in challenging settings.
Midwifery, 2013. 29(10): p. 1166-1172 DOI:
https://doi.org/10.1016/j.midw.2013.06.015.
Jackson M. Deafness and antenatal care: Understanding
issues with access. British Journal of Midwifery,
19(5): p. 280-284 DOI:
https://doi.org/10.12968/bjom.2011.19.5.280.
South African Nursing Council. Nursing Act 33 of 2005.
; Available from:
https://www.gov.za/documents/nursing-act.
Adigun OT and Mngomezulu TP. ‘They Forget I’m Deaf’:
Exploring the Experience and Perception of Deaf
Pregnant Women Attending Antenatal Clinics/Care.
Annals of Global Health, 2020. 86(1): p. 10 DOI:
https://doi.org/10.5334/aogh.2942.
WHO. Universal health coverage (UHC). 2021; Available
from: https://www.who.int/news-room/factsheets/detail/universal-health-coverage-(uhc).
Kuenburg A, Fellinger P and Fellinger J. Health Care
Access Among Deaf People. The Journal of Deaf
Studies and Deaf Education, 2015. 21(1): p. 1-10
DOI: https://doi.org/10.1093/deafed/env042.
Andrissi L, Felice P, Alessandro G, Filiberto MS, Stefano
A, Herbert V, Silvia V, Nunziata C and Vittoradolfo
T. The Influence of Doctor-Patient and MidwifePatient Relationship in Quality Care Perception of
Italian Pregnant Women: An Exploratory Study.
PLOS ONE, 2015. 10(4): p. e0124353 DOI:
https://doi.org/10.1371/journal.pone.0124353.
Karliner LS, Jacobs EA, Chen AH and Mutha S. Do
Professional Interpreters Improve Clinical Care for
Patients with Limited English Proficiency? A
Systematic Review of the Literature. Health Services
Research, 2007. 42(2): p. 727-754 DOI:
https://doi.org/10.1111/j.1475-6773.2006.00629.x.
WHO. Nursing and Midwifery. 2018; Available from:
https://www.who.int/news-room/factsheets/detail/nursing-and-midwifery.
Crotty M. The foundations of social research : meaning and
perspective in the research process. 1998, London ;:
Sage Publications.
Scotland J. Exploring the Philosophical Underpinnings of
Research: Relating Ontology and Epistemology to
the Methodology and Methods of the Scientific,
Interpretive, and Critical Research Paradigms.
English Language Teaching, 2012. 5(9): p. 9-16 DOI:
http://dx.doi.org/10.5539/elt.v5n9p9.
Hammarberg K, Kirkman M, and de Lacey S. Qualitative
research methods: when to use them and how to judge
them. Human Reproduction, 2016. 31(3): p. 498-501
DOI: https://doi.org/10.1093/humrep/dev334.
Busetto L, Wick W and Gumbinger C. How to use and
assess qualitative research methods. Neurological
research and practice, 2020. 2: p. 14 DOI:
https://doi.org/10.1186/s42466-020-00059-z.
Mthembu S, Mtshali N and Frantz J. Contextual
determinants for community-based learningprogrammes in nursing education in South Africa :
part 1 : contemporary issues in nursing. South African
Journal of Higher Education, 2014. 28(6): p. 1795-
DOI: https://doi.org/10.20853/28-6-426.
SANC, Act 33 of 2005. 2005.
Palinkas LA, Horwitz SM, Green CA, Wisdom JP, Duan N
and Hoagwood K. Purposeful sampling for
qualitative data collection and analysis in mixed
method implementation research. Administration and
Policy in Mental Health and Mental Health Services
Research, 2015. 42(5): p. 533-544 DOI:
https://doi.org/10.1007/s10488-013-0528-y.
de Waal PJ. The Protection of Personal Information Act
(Popia) and the Promotion of Access to Information
Act (Paia): It Is Time to Take Note. Current Allergy
& Clinical Immunology, 2022. 35(4): p. 232-236.
Nyumba T, Wilson K, Derrick CJ and Mukherjee N. The
use of focus group discussion methodology: Insights
from two decades of application in conservation.
Methods in Ecology and Evolution, 2018. 9(1): p. 20-
DOI: https://doi.org/10.1111/2041-210X.12860.
Rutledge PB and Hogg JLC. In-Depth Interviews, in The
International Encyclopedia of Media Psychology.
p. 1-7.
Kamberelis G and Dimitriadis G. Focus Groups: Strategic
Articulations of Pedagogy, Politics, and Inquiry, in
The Sage handbook of qualitative research, 3rd ed.
, Sage Publications Ltd: Thousand Oaks, CA. p.
-907.
Elo S and Kyngäs H. The qualitative content analysis
process. Journal of Advanced Nursing, 2008. 62(1):
p. 107-115 DOI: https://doi.org/10.1111/j.1365-
2007.04569.x.
Erlingsson C and Brysiewicz P. A hands-on guide to doing
content analysis. Afr J Emerg Med, 2017. 7(3): p. 93-
DOI: https://doi.org/10.1016/j.afjem.2017.08.001.
Shenton AK. Strategies for ensuring trustworthiness in
qualitative research projects. Education for
Information, 2004. 22: p. 63-75 DOI:
https://doi.org/10.3233/EFI-2004-22201.
Tong A, Sainsbury P and Craig J. Consolidated criteria for
reporting qualitative research (COREQ): a 32-item
checklist for interviews and focus groups.
International Journal for Quality in Health Care,
19(6): p. 349-357 DOI:
https://doi.org/10.1093/intqhc/mzm042.
Stahl NA and King JR. Expanding Approaches for
Research: Understanding and Using Trustworthiness
in Qualitative Research. Journal of Developmental
Education, 2020. 44(1): p. 26-28.
Forero R, Nahidi S, De Costa J, Mohsin M, Fitzgerald G,
Gibson N, McCarthy S and Aboagye-Sarfo P.
Application of four-dimension criteria to assess
rigour of qualitative research in emergency medicine.
BMC health services research, 2018. 18(1): p. 120
DOI: https://doi.org/10.1186/s12913-018-2915-2.
Nowell LS, Norris JM, White DE and Moules NJ. Thematic
Analysis: Striving to Meet the Trustworthiness
Criteria. International Journal of Qualitative
Methods, 2017. 16(1): p. 1-1 DOI:
https://doi.org/10.1177/1609406917733847.
Korstjens I and Moser A. Series: Practical guidance to
qualitative research. Part 4: Trustworthiness and
publishing. The European journal of general
practice, 2018. 24(1): p. 120-124 DOI:
1080/13814788.2017.1375092.
Connelly LM. Understanding Research. Trustworthiness in
Qualitative Research. MEDSURG Nursing, 2016.
(6): p. 435-436.
Saunders B, Sim J, Kingstone T, Baker S, Waterfield J,
Bartlam B, Burroughs H and Jinks C. Saturation in
qualitative research: exploring its conceptualization
and operationalization. Quality & quantity, 2018.
(4): p. 1893-1907 DOI:
https://doi.org/10.1007/s11135-017-0574-8.
Staunton C, Adams R, Anderson D, Croxton T, Kamuya D,
Munene M and Swanepoel C. Protection of Personal
Information Act 2013 and data protection for health
research in South Africa. International Data Privacy
Law, 2020. 10(2): p. 160-179 DOI:
https://doi.org/10.1093/idpl/ipz024.
Lulé D, Kübler A and Ludolph AC. Ethical Principles in
Patient-Centered Medical Care to Support Quality of
Life in Amyotrophic Lateral Sclerosis. Frontiers in
Neurology, 2019. 10 DOI:
https://doi.org/10.3389/fneur.2019.00259.
Sugiura L, Wiles R and Pope C. Ethical challenges in online
research: Public/private perceptions. Research
Ethics, 2017. 13(3-4): p. 184-199 DOI:
http://dx.doi.org/10.1177/1747016116650720.
Signore C, Davis M, Tingen CM and Cernich AN. The
Intersection of Disability and Pregnancy: Risks for
Maternal Morbidity and Mortality. Journal of
Women's Health, 2020. 30(2): p. 147-153 DOI:
https://doi.org/10.1089/jwh.2020.8864.
de Souza MFNS, Araújo AMB, Sandes LFF, Freitas DA,
Soares WD, Vianna RSDM and Sousa ÁADD. Main
difficulties and obstacles faced by the deaf
community in health access: an integrative literature
review. Principais dificuldades e obstáculos
enfrentados pela comunidade surda no acesso à
saúde: uma revisão integrativa de literatura., 2017.
(3): p. 395-405 DOI: https://doi.org/10.1590/1982-
Orrie S and Motsohi T. Challenges experienced by
healthcare workers in managing patients with hearing
impairment at a primary health care setting : a
descriptive case study. South African Family
Practice, 2018. 60(6): p. 207-211 DOI:
https://doi.org/10.1080/20786190.2018.1507566.
De Andrade Costa A, Vogt SE, Ruas EDFG, Holzmann
APF and da Silva PLN. Welcome and listen to the
silence: nursing care from the perspective of deaf
woman during pregnancy, childbirth and postpartum.
Rev Pesqui Cuid Fundam, 2018. 10: p. 7 DOI:
https://doi.org/10.9789/2175-5361.2018.v10i1.123-
Haricharan HJ, Heap M, Coomans F and London L. Can we
talk about the right to healthcare without language? A
critique of key international human rights law,
drawing on the experiences of a Deaf woman in Cape
Town, South Africa. Disability & Society, 2013. 28(1): p. 54-66 DOI:
https://doi.org/10.1080/09687599.2012.699277.
Pereira PCA and de Carvalho Fortes PA. Communication
and Information Barriers to Health Assistance for
Deaf Patients. American Annals of the Deaf, 2010.
(1): p. 31-37 DOI:
https://doi.org/10.1353/aad.0.0128.
Olson AM and Swabe L. Communication Access for Deaf
People in Healthcare Settings: Understanding the
Work of American Sign Language Interpreters. The
Journal for Healthcare Quality (JHQ), 2017. 39(4):
p. 191-199 DOI:
https://doi.org/10.1097/JHQ.0000000000000038.
Arulogun OS, Titiloye TM and Desmenu A. Barriers faced
by service providers in meeting the sexual and
reproductive health needs of deaf persons in Ibadan
metropolis: a qualitative study. J Med Med Sci, 2013.
(11): p. 5 DOI:
http:/dx.doi.org/10.14303/jmms.2013.146.
Senne T. Deaf women’s lived experiences of their
constitutional rights in South Africa. Agenda, 2016.
(1): p. 65-75 DOI:
https://doi.org/10.1080/10130950.2016.1198613.
Masuku KP, Moroe N and van der Merwe D. 'The world is
not only for hearing people - It's for all people': The
experiences of women who are deaf or hard of
hearing in accessing healthcare services in
Johannesburg, South Africa. African Journal of
Disability (Online), 2021. 10: p. 1-8 DOI:
https://doi.org/10.4102/ajod.v10i0.800.
Schniedewind E, Lindsay R and Snow S. Ask and ye shall
not receive: Interpreter-related access barriers
reported by Deaf users of American sign language.
Disability and Health Journal, 2020. 13(4): p.
DOI:
https://doi.org/10.1016/j.dhjo.2020.100932.
Refbacks
- There are currently no refbacks.